So I wrote a post about that, and it felt not completely spot on, but I posted it anyway.
And then we had a server crash and everything that happened on the website since the last backup of the site, well, that stuff went to the abyss of lost text that exists somewhere in the ether.
So, two years. Holy cow, eh?
Lucky me.
And I do mean that. I know that I got a really good deal in a really crappy situation. I have no guarantees that I won’t have a recurrence. I only have the good thing where the longer I go without a recurrence, the more likely I am to be able to avoid having one, statistically speaking.
Fingers crossed.
That said, I want to talk about the whole crazy world of blogging about having cancer and what that is like.
See, at some point in the past Louise found my site, dropped me an e-mail and asked if she could link her blog to mine. I was delighted to have been hooked up with someone who could understand all the finer, agonizing details of the OVCA ordeal and said “sure thing” pretty dang quick.
Through Louise, I hooked up with several other women, all of whom were doing their part to dropkick ovarian cancer. One of those women is Cancerbaby. Cancerbaby is a brilliant writer, and, I suspect, a brilliant woman. She hasn’t made many blog entries lately and now, things are going rather crappily for her. And I feel very, very bad about that.
My girlfriend, in her great wisdom, has a belief that people you “know” through the internet but have never met in real life are “your imaginary friends”. The one exception to the imaginary friends rule is the women I have connected up with through our ovarian cancer blogs.
So Cancerbaby’s circumstances have become awful, and I feel awful.
At the same time, I know some part of what it is like to be terribly, terribly sick and how you know that most people actually can’t actually comprehend what you are going through or how wretched you feel. And on that level, I know only a small speck of what Cancerbaby is going through. And while I am grateful for my ignorance, I am very sad that someone I feel that kindred connection with is suffering and having to fight so hard. I am sad that someone has to feel even worse than I did, and to know that she has been feeling worse for quite a long time.
I wish I had some upbeat note I could leave this on, but I am coming up short on that score.
Please send whatever sort of kind and caring thoughts you can to Cancerbaby.
May 11th, 2006 at 10:39 am Spike,
Holy cow, yeah.
My fingers, toes, eyes, legs, arms … all crossed.
Anniversary’s are all a bit strange … you never know what to expect and how you might feel or if the day will just go by like any other day … it is all a bit strange.
While our journeys are very, very different, I hear so many things in your words Spike, that reflect feelings, fears and hopes similiar to mine. Your words cause me to think, reflect, feel and connect with my own “humanness”. That is a very special gift, it helps one shine the light on more dark corners of their own experience and the illumination, although uneasy at first, ultimately can make these corners much less scary.
Sending out light and healing love to the universe.
Fi
May 11th, 2006 at 6:24 pm I was going to respond sooner but just the mention of CB kind of immobilizes me. I feel so bad for her and her family… and then I feel so bad for all any of us with ovca… we live waiting for the other shoe to drop. And yet, reading all our wonderful blogs, thru the highs and the lows our lives go on.. and our lives are fantastic.
Keep on posting and being your edgy Spike self, gives me alot of LOLs.
thank you
Vicki – and my dh, I read almost everything to him.
June 25th, 2006 at 12:48 pm Hi Spike, I’ve just found your blog and thought “wowie, my 2 year anniversary of my totally screwed up, traumatic spine surgery is next week, how do I celebrate this year?” The problem is that on the one hand I don’t feel that I’ve made much progress physically in the 2 years since the surgery (even though I practically live at the rehab department at the hospital). But then I think about some milestones along the way (this post comes to mind: http://mumpy.typepad.com/gimpy_mumpy/2005/12/the_living_room.html) and think ‘hey! I this deserves a celebration! Right?’
Hope this message finds you well.