Mar 012008
 

cancer_vixen.jpg

Over the last few years I have been exploring the delights of the graphic novel and recently, at my beloved neighbourhood branch of the local library, I stumbled upon a graphic novel called “Cancer Vixen” by a woman named Marisa Acocella Marchetto.

Now, at first glance, me and Marissa couldn’t be more different.
She lives in the heart of the chaos and glamour of NYC. Suffice to say that I do not.
She is a cartoonist for The New Yorker. Not wishing to disappoint, but I am not this.
She is quite clearly heterosexual. Absolutely, without a doubt, I am not.
She describes herself as a “shoe crazy, lipstick-obsessed, wine-swilling, fashion fanatic, single-forever-about-to-get-married with a fabulous life finds… a lump”
Of the above, I can only kinda sorta claim one of those descriptors as coming close to me and my experience.
So, yeah, she is a living the high life, life full of glamour straight girl who finds a lump in her breast and then talks about what comes after.

And the thing with cancer is, if your identical twin had the same sort of cancer that you had, God forbid for both of you, you would each have wildly different experiences.
What is freaky for me about this graphic novel is the ways we had very similar experiences, in spite of our crazy differences.
She got engaged to be married and then got diagnosed with cancer. Me too.
She, and this is almost too much for my tiny brain to cope with, got diagnosed within two days of me. It’s actually possible we were diagnosed on the same day. And on some level, that makes sense, if you think about how many people in this big old crazy world have the unpleasant experience of being told they have cancer, well, for sure, some of us mouthy ones are bound to overlap with each other and then blab about it publicly. Still. To see in print that some gal got that soul crushing news on the same calendar day as you, well, it messes with your head.
She had breast cancer. I had ovarian cancer.
Hers was in the 1st stage. Mine was 3 C. Pretty different.
She was self employed with no health insurance. I was looked after by my government’s healthcare plan, my extended benefits and a bunch of people who cared about me.

Here’s a confession.
I am not sure anyone who has had cancer, no matter what its outcome, can accurately explain that experience to anyone who hasn’t stared at the ceiling of their room, wondering how it might work out and if they are gonna croak, right in that room, sometime far too soon.

I may be wrong. I would be happy to be wrong. My opinion is far from carved in stone. But I think that, really, at the end of the day, cancer is the thing that everyone fears and, when someone tells you that you have it, you become a wee bit different than regular people. I may be wrong about all that. But I don’t think so.
So, in spite of our many and significant differences, me and old Cancer Vixen had some freaky areas of overlap.
Or perhaps it would be more appropriate to say that she, more than anyone else I have read to date, captures some of the crazy, deep, chasms of emotion one explores when you parachute in to cancer land.

Marisa Acocella Marchetto does a great job of describing those moments where you feel crippled with guilt because your loved ones are going to panic, so you try to make it all be okay, cuz it feels awful to cause so much pain and stress to the people that you love but you can’t do jack to make it different and neither can they.
She talks about the terror and the grief you feel when you think, “Ah, right, I was supposed to get married but it looks like I will just my love on an amazing hellride instead. Buckle up, baby, the road gets bumpy ahead.”
The “wow, my life was actually bordering on being perfect and then this crazy shit happened to me.”
She does a great job of portraying the way some people just jump up and want to do whatever they can to help.
She does an equally great job of explaining how some seemingly well intentioned people can say all the wrong ‘blame the victim’ sort of things and all you can do is paste a smile across your sickly hairless head.
She talks about how hard it is to lose your hair.
Let me just say, for me, as a big bad dyke, I didn’t think it would be as bad as it was for other people, especially other women. Plus a handful of friends came by and had their heads shaved on the same day I did mine.
Thanks. My eternal thanks to that group who stepped up and tried to make that easier for me.
Because it was really awful. I thought being all queer and outside of the box in every sense, it would be okay. But it was such a huge issue for me. Being hairless was the equivalent of being the modern day eunuch and it almost killed me, from an ego point of view.
So when a shoe loving, fashion-diva straight girl talks about her struggles, I say, “Oh yeah, sister.”
She also, bless her highly fashionable boots for this, talks about chemo brain and memory loss.
I have googled ‘chemo brain’ and come up with squat.
But here’s the thing, a very candid moment….
Chemo ate my memory, there is no doubt about it in my mind.
But my mom died of Alzheimers’, so, when I don’t remember to hand in an assignment or that I should meet you at the movies and didn’t show up or that we already had this stupid conversation and you can’t believe I don’t remember that, I don’t always know which to chalk things up to.
But I do know, on a core level, that losing your memory sucks like few other things.

Anyway, you should read this book. I think you should.
If you can’t get it from your local library, it’s only 11 bucks from the dreaded and diabolical Amazon.ca

Rodger Dodger
over and out

Spike
spewing out 3 posts over 4 days… but don’t get used to it, folks, I’m just not that reliable.

** This post was generously sponsored by the words “freaky” and “crazy”.

 Posted by at 12:26 am

  5 Responses to “Cancer Vixen”

  1. Spike–I am a totally straight old woman who totally loves you. Just yesterday I was with my husband talking to my doctor about whether to start some kind of treatment for a rising CA-125. My recent scan showed nothing but all the studies say I have something evil growing somewhere. I no longer have the tiny hope that I would be one of the lucky few who escapes this hideous disease. It’s not quite as bad as getting the diagnosis in the first place, but close. Still, I woke up this morning after a good nights sleep–better sleeping through chemistry–and the sun was shining and the birds were singing and I felt better. Then I read this blog and I felt soooo much better. You write so well about this awful experience. I appreciate your humor, honesty and kindness. You make this whole thing a bit less lonesome for me. I have a big, loving, supportive family and they suffer in their own ways, but they haven’t been where we have been with this. Thank you so much.

  2. I must second that. All of it. Losing the hair was something that I absolutely felt would be the least of my worries but it turned out to be so huge. The day it started falling out in earnest I sobbed uncontrollably, in the shower, so that noone else would know, all the while thinking “how vain, what is wrong with me?” Now, 1 year post chemo my multi tasking, high stress, never stop, administrative position has left me even more vividly aware of how many braincells I’ve stunted. You do write exceptionally well about this horrid experience and I had to say so today. Thank-you.

  3. losing my hair made me feel naked… until I got a tattoo on my head. Then everyone just thought I was punk rock. Losing my eyebrows nearly killed me. It was awful. AWFUL. Plus the rain and sweat ran right into my eyes without them.

    Chemo brain exists. A few months ago I was scheduled to go speak to a group of med students about my experience with ovca. I had done it a half of dozen times before, in the same place. Well, I showed up 30 minutes late because I forgot which street the building was on. I just rode up and down about a five block radius. Finally, I realized I had kept riding right past it. Chemo brain is terrible. I have to write everything down. Now when I go to meetings my boss points out that I take great notes and he depends on me for it. Not really a good thing. I don’t want to be the department note taker. However, if I don’t write it down, I won’t remember. I’m only 33.

    Thanks for the info about this book, I will check it out.

    Take care spike.

  4. I am running to get this book. Oh yeah, we definitely become a little different. Just last night I was out having dinner with friends who were complaining about their retirement benefits. Duh…I just want to live.

    I also do the talking thing to med students. If you don’t, think about it, you’d be great. What a story to tell.

    Patsy
    stage IIIC and BRCA2 positive

  5. Yeehaw.
    I used to be a lurker way back when and stopped reading, pretty much when you stopped writing! lol.
    Cleaning out my favorites, I clicked, hoping you were still writing, even if it was just sporadic.
    Thrilled that you are!
    As for the chemo brain…to quote you, “Oh year, sister!”
    I used to be a police dispatcher. Key words being ‘used to be’.
    Now…I ask my poor daughter the same question 20 times a day, seriously doubt if I ever dispatch again.
    Glad to hear your doing well and writing again;)

 Leave a Reply

(required)

(required)

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>